In 2001, we lost Jackie (our sister, our wife, our mother, our daughter) to unexplained sudden cardiac arrest, at the young age of 31.  Since then, Greg (our nephew, our son, our brother, our grandson) has suffered 5 cardiac arrests, which we now know are the result of our family having ARVC, an inherited cardiac disease.  Greg was only 20 years old when he had his first arrest.

While major advancements have been made in the understanding of this disease since 2001, our family is committed to not only further supporting awareness, research and care of people afflicted with ARVC, but to also connect with families dealing with the consequences of its occurrence.